Friday, November 11, 2011

BLESSED

We have seemimgly been blessed, Stephen King has had very few side effects to his first chemo treatment. Some indigestion and jittery voice appear to be it. His session lasted 7 hours yesterday and will be repeated every 3 weeks for 6 treatments, so he is in for a long haul this winter. Actually we both were surprised at the ease we felt at the cancer center. The staff is wonderfully supportive without smothering the patients. The other patients are kind, respectful and quiet. Steve read alot, but couldn't nap because of the massive amount of steroids he had been given prior to treatment and the near constant need to empty his bladder! All that fluid has to be released. He was jittery and almost giggly from the steroids, which I quite enjoyed watching. Usually he isn't a giggly man!
It is now Friday morning and all is well. the only side effect is the jittery voice and a tendency to rattle on about anything. And everything. Courtney and I have been entertained by this especially during the evening. Stephen King does a running commentary on all the TV shows. He is a faithful Jon Stewart fan and apparently the steroids have increased his love for him. I cannot decide which is funnier; Jon talking about politics or Stephen King loudly and RAPIDLY repeating Jon talking about politics. Totally sarcasm squared!
We are maintaining the status quo here in the Valley, living as near a normal life as we can. Except I am more conscious of each day, each sunrise and sunset than I've ever been. We have been blessed by this and by each other and we really, really know it.
Thanks for all your loving support, Gaggle. Talk to me, Girls. I love you all.

Saturday, October 29, 2011

THE BEST LAID PLANS.....

Hello all,
      Just when you think you have a plan... you get a wake up call from the Man in charge. Stephen King and I planned our lives long ago: I'd stay home raise the kids, keep house while he made the living. Then I'd finish school, have a career and he would retire early. About that time, his company restructured and he lost his job, just before retirement. God laughed. But He saw us thru it and Steve found a less stressful job for a few years. Then retired. If anyone ever enjoyed retirement it is Stephen King. After 40 + years of days starting at 4:00 AM and ending after dark, he was free to do what he wanted. He became my "house bitch". Our joke. He made beds, washed dishes and shopped. I found this wonderful. Grocery shopping is my most dreaded chore. Ok, back to the Plan. After a rough year we decided I would retire, too. God starts grinning here, the state decided I had worked 30 days too little to get my pension. OK, we can live without it. We decide to travel. Stephen King begins to complain about his aching back. Pulled muscle? Docs agree. Chiropractor declares 6 weeks of adjustments are called for. Maybe not the answer. Doc wants tests, xrays, bone scans, lab work, catscans. God cries alittle here, I think...Lung cancer that has spread to the bones. Spine, hip, femur, breast bone and collar bone. We wait while the biopsy is being examined, and wait, and wait. Of course, I have to do some research. Never do research. There is NOTHING good about this. But God has smiled at us again, the cancer is adencarcinoma, a common type usually treatable with good results. No cure, but time. Chemo therapy begins next week and Stephen King has decided he will breeze thru it and carry on with his plans. I cannot take that optimistism away from him by repeating horror stories of chemo I have always heard. Attitude and faith will see us thru this. We will lean on each other as always. Throughout our 45 years together, it has been us against the world. From two kids falling in love against everyone's advice to retired geezers having God laugh at our plans, we are together, hand in hand. What doesn't kill us, makes us stronger, we learned this so many lessons ago. We are still here. And God is still smiling at us.
      Stephen King wants us to keep our life normal, no moping around, no hidden tears, no whispered secrets. And so we are. I had dinner last night at the Winery with my Spring Break girls and he took a long walk with Hank the dog and Ian the 3rd son. We both had a wonderful time. The boys and their families were here tonight Trick or Treating and having soup and cupcakes. When Courtney gets here on Monday, we will do the same things we always do when she visits. The treatments will just be worked in around our planned activities. Sunday we will have our big party for Stephen King and Trent, who missed being born on his dad's birthday by 4 hours. Christmas shopping, Thanksgiving, staying with my mom will all go on as usual. He is cllingthe shots and we will go along as long as we must.
     As for me, I'm still numb. My friend who saw her son thru lynmphoma, tells me to stay numb. I know I should be experiencing something else, something profound, painful, scary. But not yet. I check every morning, asking myself, "Is it here yet? That overwhelming feeling of helplessness". But it isn't. I know it will come. I know it has to come. But not now, God must not be ready for it yet. I know I'm not.
      Talk to me, Ladies. Love, Hedy

Tuesday, October 18, 2011

Hello Ladies,
         
    I have always been a realist, perferring to know the facts and deal with any issue head on. But we received some news yeterday that has shaken us into wanting to hide from the truth. Stephen King's backaches are not from a pulled muscle afterall, he has bone cancer coming from lung cancer. Makes me want to crawl in a hole and cover my head, but that isn't going to happen here! We will follow the doctors' lead and fight this. It isn't curable, but they will treat it to stop progression and pain. Steve's general good health and strong body will help him fight this, as will his attitude. If ever anyone had an attitude...it is the Kings!

His take on this is that it sucks. But we have handled lots of things in our 45 years together; massive head injuries from a work accident, bone tumors, house fires, lupus, drug addicted kid, critically ill grandchildren, death of parents. Ahhh the list goes on, each seemed insurmountable in its time, but we made it successfully through each of them. This may have a different outcome, but we will deal with it in our usual way, day by day, step by step, head on. Reality sucks but it has to be dealt with, it doesn't go away. Steve said yesterday, "Another test. As long as it is strength, not smarts, I'm OK". Always has a smart remark, he has.

Please, send up your prayers, good thoughts, or positive vibes, whatever is your belief, for us. We will need support from all our friends with this one. Talk to me. Love

Thursday, October 6, 2011

AUTUMN COLOR

Good Sunday morning to you all,
        It is a lovely fall weekend in the Valley, we had a big frost last night. I'm glad that I haven't had flowers on my porches this summer to be bitten. Trent took mine to their house when we were in Florida and I never brought them back here. Nina has coaxed them into beautiful blooms all summer and they are still going strong. With my time being spent at Mom's, I would have neglected the flowers and they woud have been long gone by now. I'll bring the ferns home for my parlor soon and hope they will winter well. I may pick up a mum or two today just to brighten up the porch.
        My family continues to care for our mother around the clock, she is much improved, but living alone is not a possibilty yet. Nor may it be in the future. The physical injury has exaggerated the Alzheimers' symptoms and the fear of another fall keeps us close to her side. My sister, brothers, and sisters-in-law share the responsibility of staying with Mom, rotating every 24 hours. The boys are only available on weekends, but are right there when they can be. We all are very close to Mom, each in our own way; I'm the oldest and have a bond with her, Deb has been able to spend time over the years helping Mom with cleaning and Christmas shopping and day to day life, Mike is the first boy and the Golden Child, we all say, and Rob is Mom's baby boy.  He came as a surprise to her and Dad when the rest of us were teenagers. And he has always been a blessing, keeping them young, they always said.  We all know this may be a long journey for our family and are willing to continue as long as it takes. Thankful we have each other to help us stay strong.
        The transplant process is slowly continuing for Mackenzie. This week brought another Riley visit and a ton of lab work. When this is analyzed, they will test her parents for a donor match. We feel it is taking too long, but know this team is the best in the nation for pediatric transplants and will trust their judgement. It is rather like sitting on a skillet which grows hotter and hotter each day, and not being able to jump off. Mack has been feeling unwell for the last few weeks, but is at school each day, working on her school yearbook, keeping her grades up inspite of it all. We went to Bloomington yesterday afternoon to get some outfits for Senior pictures. She had taken her SATS that morning and had a ton of nervous energy to work off, by 6:00pm she was zonked out in the backseat. No late Saturday nights for her until after the trnsplant. A transplant is going to give her more than just  healthy kidney, it will give Mackenzie a normal teenage life. She has been ill since she was 9 and doesn't know normal life or feeling good. I cannot wait for her to experience life at full power. She is such a sweet girl, trusting in her parents, her doctors and her God to keep her safe.
       Courtney will be here for the month of November. We are counting the days. She has had strep and even had a doctor make a house call! I was surprised to hear that in Australia it is not unusual to have a heatlh insurance policy which provides a doc come round whenever one is too ill to get out. Their doctor has recently relocated across the city and they decided to use this service. She was quite impressed by the lady who showed up after Ken's call. Competent and professional and reassuring that her high fever and earache were something treatable and not the plague Court felt it to be! 
         I cannot believe it is already Thursday again, where are we rushing to these days? I expected retirement to be a slowed down version of life, but amazingly it moves even faster than the world of work. I attempt to enjoy quiet moments each day and not just live for weekends, however, some days are gone before I know it. I have been home alone for a few hours this morning and have truly enjoyed the action of stripping beds, sweeping floors and pressing clothing. It feels so normal but it has been weeks since I have done these chores at one time. Usually it is a bit of laundry here, a run through with the vac there and finger pressing the wrinkles from my tops and shaking out my jeans! :-). I plan to take Mom to see The Help this evening, she read the book earlier, but has forgotten most of it. I'm excited for her to see the film, she enjoys movies. At least movies on Lifetime, which don't require much attention. My oh my that network tries my patience with its made for TV nonsense. Our lives are challenging, but imagine how one would survive some of those ridiculous situations on there!
         I bought a bright yellow mum for my porch as we came home from Indy on Tuesday. It looks so nice and cheerful in the big green pot Shawn gave me for my birthday. A point of light in an otherwise drab porch. I got Shawn and Mom a couple of them for their porches too. We all need some color to perk us up and I love fresh flowers. Maybe I'll be a florist when I grow up! Spreading the joy one plant at a time.
        Stephen King has suffered back pain all summer and it continues to nag him, but he is going to put a new roof on the house this month with the help of the boys. I'm so excited to see that happen, the old green shingle roof is tired and dirty. A clay colored metal roof will up the cheerful vibe around this homestead. I plan to paint the garage and garden shed next spring and put one of those barn quilts on the garage. Our little place is nestled into a hillside and it will be sweet to fancy it up abit. The house is a cosy place inside and these changes will help the outside feel cosy too. Love fluffing up the home place!
        The Fall Gagglefest is set for Janelle's on Oct. 21 and I cannot wait to see everyone and catch up with all of my girlies. This is a special group for me, most of my friends have been local and usually family connected until the Gaggle. Never have I meet a stronger group of ladies. All of them work full time as wonderful counselors or teachers and still take care of their families without missing a beat. Each faces her own struggle but is always quick to respond to a friend in need. Old Mothergoose is blessed to be part of this gang.
         Now I really have to shower and get to Mom's. My sister-in-law has had all the fun she needs in the last 24 hours and I get my turn. How blessed we are to have such loving girls in our brothers' wives.  Carol and Donna are more than in-laws, they are daughters to Mom. And we all love them for it.
        Enjoy this wonderful weather, everyone. Talk to me.

Tuesday, September 20, 2011

9-11 Ten Year Anniversary has past without another attack on our country, but each time we hear that date we relive the horror and the fear of that day. Time cannot bring back those who lost their lives, nor can time remove the horror our country witnessed. I believe 9-11 was the day US citizens realised we were living a dream. We have unconsciously (maybe) assumed nothing bad could happen to our nation. Maybe individuals could suffer or be brought down, but our nation was invincible. The USA was above the rest, untouchable, teflon, now we have to realise we are vulnerable. A difficult lesson.
9-20-11. I cannot believe I didn't post that. My days seem to be running together without pause. Mom continues to need care. Her arm is progressing nicely, but she still cannot care for herself. At times it becomes too emotional to handle and I break a little. A few tears, lots of sighs then back to action. I miss my mom. She comes and goes, but is never totally herself. We never lose the need to be mothered, but now the roles are reversed.  I know so many of us will experience a parent with dementia issues, but until you do it is impossible to imagine the emotions involved. Helplessness is enormous, sadness, but tempered with the joy of being allowed to give care to someone who cared for you.
We had a King reunion this weekend. It was great to visit with cousins we hadn't seen in years. Kids I remember as pre-teens, suddenly have children of their own...in high school! How times flies. Fun to see similarities between the children of first cousins who do not remember each other. Even names are shared in some cases, Kenzie King is a 17 year old senior and a 2 year old toddler. Both with sweet, round faces and spunky attitudes. Seeing a 16 year old Marnie play croquette with two year old Ada brings back memories of their mothers, Tonya and Carla, playing volleyball as little girls.  
More later, Ladies. I'm running late. Talk to me. ps Elaine, it was terrific to hear from you. I miss you so much. Love

Friday, August 26, 2011

Hello Ladies, another Monday morning here, I've decided today will be the start of my scheduled quilt time. I will devote 2 hours to Whitt's cowboy quilt first. He is a year old already, so I need to get it finished and sent off to Chicago before he grows up! It is a simple 10 inch block quilt with a variety of cute cowboy fabrics and a horsie applique. I'm framing each block in a beige lasso print. I think I'm happy with it now, I've ripped and replaced a couple of times already.
Hi, again! This is Friday already. it has been another busy week. Monday was my night at Mom's and on Tuesday she had an appointment in Bloomington to get her new hearing aide. Our 12th trip messing with this one between Mom putting one in the garbage disposal and the doctor breaking another one. We are beginning to doubt the value of hearing! This trip turned into a lengthy shopping trip, as Mom wanted to go to Kohls. Now you know my disgust with WalMart, well Kohls is a close second on my shopping meter. I love online shopping, no stress at all sitting in my living room, clicking on pretty things to purchase.
On Wednesday, Shawn and I took Mackenzie to Riley to meet with the transplant team co-ordinator and her kidney doctor. She is a gracious lady, calm and full of info we will need for our journey to a new kidney for Kenz. We can start the testing of donors now, she gave us the criteria list. Her surgeon will not accept anyone over 50, so some of our volunteers are automatically ruled out. But we are confident that a match will be found within the family soon. They would like to do the surgery just before the Holidays to allow a long recovery without missing much school. Keep her in your prayers, please.
We got some great news this week, Ken is sending Courtney home for the month of November! She has been suffering from a big case of homesickness since Mom and Kenz are both having health issues, so he decided to surprise her. She was ruled out as a donor because the blood types aren't a match, so she thought she wouldn't be coming back until 2012. He is such a good guy. He understands how close Court is to Kenz and knows she needs to be here for awhile. We can't wait!
Janelle has offered to host a FallDown Gagglefest in Sept. I do hope we can all get there! I miss my geese! Of course, I was the one who didn't make the last one. I'm putting the end of Sept on my calendar and praying nothing interferes with that weekend. My summer world consisted of going from our house to Mom's, Stephen King did our shopping and took care of himself, I didn't have our Sunday suppers with the kids or get away for short trips as we usually do. So I am ready for some good conversation and a little dip in the counseling/education world again and catching up on all the happenings with these ladies.
Actually, I am meeting some friends from school this evening at the Winery, our first get-together since spring. This is the group that takes Spring Break together and have always been my closest friends at work. I expect to hear all the stories about the first 3 weeks of school, horror and funnies! I purposely haven't gone into school yet. I don't trust myself not to set up business and never leave. The phone calls keep coming from parents, students and teachers seeking support and advice which I can deal with. But actually being there seems like too much of a challenge.
I want to report that the scheduled quilting time hasn't happened this week since Monday! I just haven't been home long enough to do it. I planned to sneak in a few minutes this morning to get a border on Whitt's quilt. Wish me luck!
It looks like a beautiful weekend in the Valley, as we pray for the East coast. Earth quakes and hurricanes striking so hard. Take care and enjoy the weekend. Talk to me. Love

Tuesday, August 9, 2011

SCHOOL STARTED TODAY...WITHOUT ME.

Hello Ladies,
I made it. Valley went to school this morning and I slept right through it! I may have some doubts and down moments, but at this moment, I feel confident that retiring was the correct decision. I am so happy to be able to help my mom through her recovery. I shudder to think I would have to return to my office instead. Several folks have texted, messaged and called to ask how I feel about not going back, and I have to honestly say, "I haven't given it a thought!" I'm finished with that part of my life; no regrets, no seconds thoughts and no looking back.
When Mom gets on her feet and we are no longer staying at night, I m going to quilt everyday. I plan to have a scheduled morning quilting hour or two. I have so many tops to finish, patterns to cut and quilts to quilt or have quilted, I know that scheduling time will ensure they get done. I do believe that choosing fabric is the big thrill for me, maybe I should just buy fabric and gift it to a real quilter! I suppose that might cause custody issues when they were finished though.
Stephen King's garden is done. The tomatoes have just about dried up on the vines. Guess there will be no juicing this fall. He has spent many long, hot hours out ther this summer and the results were delicious. I am happy he enjoys gardening, it fills lots of empty hours for him. I do wish he had another hobby though, maybe woodworking or something like it. TV seems to rot his brain, he continues to watch NBA games from the 80s and movies from the 30s. Not just watch but ENJOY! Makes me sad to see his little head shrinking. He does spend time reading, and I love that. But he tends to drop off after a few chapters and wants to share what he's reading with me. I have a rule DON'T READ TO ME AND I WON'T READ TO YOU. He isn't quite up on that one yet.
The kiddos are starting school tomorrow and none of them are excited about it at all. The boys and Madeleine haven't had enough playtime and Mackenzie isn't sure about her senior year. The transplant is likely to interfere with school this year at some point, but we don't know when. Not knowing is difficult for her. Mack is a good patient but would like to have more of a definite timeline. She plans on working on the yearbook from her bed, she hasn't talked about the rest of her classes! I know the kids will all settle into school in a matter of days. They are all good students and learn like eager beavers. Their friends are all at school and the little ones are social butterflies. Caleb will play basketball this year and I would be thrilled if the doctors allowed Maddie to play. She is a born athlete, but hasn't been healthy enough to play in the past, with the last surgery we hope her heart will be strong enough.  Gavin has done soccer and tennis, but 1st grade doesn't have basketball. It will be something to start all those school activities over again with these boys, their dad's kept us busy in the 80s. I really cannot believe my boys are in their forties, gee, where did all the time go?
Have a stack of ironing waiting for me, Girls. Talk to me, Love